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3 Tips for Epileptics

 

Guidance at the beginning of my diagnosis with Catamenial Epilepsy was practically impossible to find. It was 2009 and the very name “Catamenial Epilepsy” had not yet graduated from medical theory to medical fact. If you typed “catamenial epilepsy” into Google 11 years ago you only received medical journal articles that barely referenced seizures influenced by hormones. My family and I could only find ONE article that actually used the name “Catamenial” when describing such a mysterious type of epilepsy. I’m putting it delicately when I say that the research process was abysmal in those days.

I wasn’t even seeking a cure for my condition, I simply wanted to know how to live with catamenial epilepsy. What do I do to work toward healing? How do I return to my normal, everyday routine in a way that doesn’t put my safety at risk? What shouldn’t I do that might cause my condition to worsen?

At 15 years old, I had a lot of faith in modern medicine and their ability to help me so these seemed like simple, even expected questions from where I stood in my state of confusion. There was a pattern with the many neurologists I visited and it was a tendency to downplay my condition. Maybe it was because of the fact that each doctor saw many people dealing with seizures so it was just the “norm” for them. But it wasn’t the norm for me, not even close. I went from fretting over whether or not I was going to be able to make it to my school’s football game on Friday night to how I could still be a normal teenager while living with a potentially harmful disease. The worst part is that is was this downplaying behavior from my doctors that prevented me from realizing how truly careful I needed to be in every area of my life.

Ignorance is not always bliss and doctors can’t always be trusted. Truthfully, they can never be trusted and everything they recommend needs to be thoroughly researched before you make a decision. My own research along with my personal experience with epilepsy has taught me so much more than any doctor ever has.

I can look back now over the decisions I made early on and the majority of them I would do differently if given the chance. That being said, I cannot say that I am not grateful for all that those poor decisions have taught me. I would not be who I am today without those mistakes therefore I cannot regret them.

However, I would regret not sharing a few pieces of advice that I hope will serve as guidance for those who are dealing with similar circumstances. I may be grateful for my own growth during my journey, but I also wish to prevent others from making the same mistakes. So, for the sake of sparing another from a few gruesome trial and error processes, here are the top three actions I wish I had taken at the start of my journey with Catamenial Epilepsy.

 

#1 Diet – Go Organic, eliminate processed foods completely, and pay closer attention to ingredient labels.

The food you put into your body has a monumental effect on every area, most especially your brain. Understanding the dangers of synthetic foods is imperative to improving your seizures because synthetic ingredients will prevent the human body from functioning correctly. These influential factors will also make correcting problems an impossible task. Ingredients like Xanthan Gum (a cheap emulsifier) and Carrageenan (thickening agent most commonly found in dairy products) are formulated in a lab with chemicals and who knows what else (most of the time we don’t want to know…yes, it is that gross!). The greatest problem aside from the synthetic nature of these ingredients is a little fact that the human body cannot digest them. The body does not know how to correctly process these synthetic components found in way too many of the foods available in every grocery store. The types of foods you most likely eat on a daily basis.

Feed your body natural foods (such as a strawberry or an egg) and it knows exactly how to digest each as well as which naturally occurring nutrients to store in order to maintain your good health. But, give it a sulfated polysaccharide (carrageenan) and the body has absolutely no idea what to do with it or where to send it because, in all honesty, it is not meant to be consumed. This causes problems in digestion and the body is forced to take guesses on what to do with these alien ingredients. Sounds concerning, doesn’t it? Well, that’s only the beginning! Here’s the really concerning part about these guesses: the body won’t absorb the alien ingredient because it does not recognize it nor will it excrete the synthetic substance just in case it might be necessary for the future. So what happens to this mystery food? Well, in all of this confusion the body decides to store it. By storing it, these synthetic ingredients (which are essentially toxins) begin to accumulate in various areas, usually in the cells or the bloodstream. One toxin might not create any issues for your total body health, but synthetic ingredients are found in pretty much all processed foods these days and daily consumption will result in quite the collection of toxins. You may not realize this in the moment you’re eating those potato chips or drinking that soda, but you are slowly creating an army of toxins with each bite and every sip that can easily wreak havoc on your body.

Making food from scratch is the only way you can truly guarantee you are eating toxin-free meals. I know home cooking is a lot of work, trust me, I KNOW. But, reducing my seizure activity makes it all worth it! Not to mention, the food tastes way better! When I was eating processed foods constantly I never noticed how fake and flavorless they were, sometimes certain products can even taste like plastic…hmmm, I wonder why that is? Maybe it is because these foods contain many of the same ingredients you find in plastic products. You wouldn’t willingly eat a plastic straw or a plastic water bottle, right? So why would you willingly eat plastic disguised as food?

The truth is, “home cooking” isn’t just a term to help market Southern-Style breakfast restaurants. It is a lifestyle choice that will have a positive impact on your entire household. Luckily, we’re living in an age of technology where things like recipe blogs are easily accessible and filled with lots of fantastic recipes to get you started on this new path. Plus, you have access to thousands of healthy recipes without it costing you a dime. The question here isn’t about IF you can do this. It’s all about WHEN. When are you going to make the necessary change for better health?

Personally, I kept up with my usual processed foods diet that I had before my diagnosis with epilepsy for at least two years post-diagnosis. I hate to think of the damage I was creating by continuing to accumulate synthetic toxins from my food AND my newly added anti-epileptic drugs (AEDs). Alone, each component has the ability to trigger seizures so I can only imagine what was happening to me with the two of them combined.

It took a crisis situation to wake me up enough to actually consider the idea that maybe, just maybe, my diet could be contributing to the overall state of my brain health. I was lying on the floor of a P.F. Chang’s Restaurant having a full-blown grand mal or tonic-clonic seizure. Hormonally, the time of the month did not make sense for such an occurrence. My parents were out of ideas as to why the seizure happened until my grandma suggested that maybe something in the food caused an issue. What was meant to be a simple and helpful theory actually turned out to be the revelation my parents needed in order to take that first step on the path toward long-term healing. Soy was the culprit that day and I have avoided it ever since.

 

#2 Bloodwork – Go deeper, explore the problem inside, and then work to correct deficiencies/abnormalities.

Some of you may be thinking, “Seriously?! More bloodwork? I just had every test known to man performed on me when I was in the hospital and received my diagnosis!” If someone told me to get more bloodwork done back when I was fifteen I probably would have disowned them. There is no doubt in my mind that I would not have taken the advice because I had just left a hospital and also because it takes effort to go to the lab. I was a teenager, I had much more important things to be doing with my time like texting or painting my nails.

However, when I say the words “bloodwork” I’m not talking about your average test. I’m talking about a bloodwork panel that will thoroughly analyze your primary vitamin and mineral levels. The test I have in mind is called the Organic Acids Test (OAT) and it will analyze all of these and more.

When I was first diagnosed, I trusted that my doctors had thoroughly reviewed every piece of information that could be pertinent to understanding the cause of my seizures. Nope. It turns out the doctors barely scratched the surface by doing the bare minimum. So, once again I was let down by my doctors and it was left up to me to figure out this epilepsy puzzle.

Just a little FYI for my fellow epileptics, this will happen often so I recommend keeping your expectations very low when it comes to modern medicine personnel if you wish to be satisfied with their advice.

That being said, let’s get back to the Organic Acids Test (OAT). I am such a big fan of doing this test because each human body is unique. Therefore, each is going to possess it own unique deficiencies. The sooner you find these deficiencies, the sooner you’ll be able to take yet another step on the path toward healing. And not just any healing, but healing that is customized to fit your specific needs. Once again, ignorance is not bliss where your health is concerned. Although modern medicine offers a wide variety of convincing medication for every epileptic, the reality is that a medicinal regimen needs to be tailored to the individual.

Bloodwork will help you understand how to create your own regimen. Personally, I discovered that I am deficient in the majority of my primary vitamin and mineral levels. Specifically, I found my concerning Vitamin D deficiency. If you didn’t know before, let me share that a deficiency in Vitamin D alone is enough to trigger seizures in some individuals. The healthy level should fall between 30 and 100. My level was 1 at the time of my first test. One! It might as well have said “Nada.” What good is a level of 1 Vitamin D going to do in my body? It’s barely holding on to its existence in my body, I really don’t think there will be any leftover Vitamin D to perform the duties it is supposed to according to nature.

I am happy to report that I have been able to correct this severe deficiency in a matter of months thanks to Seeking Health’s Vitamin D complex liquid drops. My levels are now at a healthy 67 and I continue to use Seeking Health’s supplement on a daily basis.

It is because of bloodwork that I also discovered my hormone deficiencies and my estrogen dominance. Obviously, there was some hormone imbalance present (hence my special diagnosis of Catamenial Epilepsy instead of simply Epilepsy), but I never understood just how seriously low my levels are. This insight has guided me throughout my entire journey with epilepsy and it has allowed me to take the necessary steps that will result in my healing. Knowledge is power when it comes to living with epilepsy. The more you know, the better equipped you will be able to handle the task at hand…Finding the source of your problem. Band-aids are for amateurs, you deserve answers! In my experience, this begins with blood work.

 

#3 Eliminate Hormones – Find and remove the common hormone-ridden products from your lifestyle.

This particular action is crucial for those with Catamenial Epilepsy because your seizures are hormone-related. Furthermore, there is a problem with your hormones; they are imbalanced and you will not find balance if you are constantly exposing your body to synthetic hormones.

Why is it so important to avoid synthetic hormones whether you have Catamenial Epilepsy or not??

Well, synthetic hormones are a bit like synthetic food ingredients (as I discussed above) they confuse the body. Your body is already hard at work making progesterone, estrogen, testosterone, cortisol, and so on. When you feed synthetic hormones to your body they disrupt this production by posing as the naturally produced hormones that are meant to be in your body. These imposter hormones cause your overall hormone levels to increase drastically.

So drastically, in fact, that your body reads the data and backs off on its natural production so as to maintain healthy levels and not create an abundance. This may not sound so bad, but in many cases, the body will stop production altogether because the hormones to maintain healthy levels are mysteriously being supplied from an outside source so why should they continue production?

The human body is logical in its decision-making process and, on paper, this may seem like the correct decision. However, synthetic hormones are not an adequate replacement for the real thing. Here’s a football analogy for all of my fellow fans out there: synthetic hormones are second-string to the starting hormones, our REAL hormones. They may appear to be good enough to handle keeping the body healthy, but they are nowhere close to the job performed by real hormones. Our natural hormones kick booty out there on the playing field by actively reading levels, making changes if necessary, and adapting to the body’s hormonal needs accurately and consistently. Can synthetic hormones do this? Not a chance! You get exactly the same hormone every single time because you are using a pre-made type of hormone. It doesn’t change or adapt to your body’s needs. When synthetic hormones begin functioning like the first-string hormones you are at risk for both an abundance or a deficiency. In short, synthetic hormones do nothing but present a lot of potential problems for your body.

Also, if you suddenly decide to stop feeding your body those synthetic hormones your body is not aware of your decision until a deficiency begins to form and it is needed to produce natural hormones again. The thing about hormone deficiencies is they can be a bit of a challenge to correct because we are constantly exposed to synthetic hormones on a daily basis. Our air, food, and cosmetics are all guilty of containing such elements.

So, although we can’t do much about avoiding synthetic hormones in our air there are other areas where we can begin to reduce and hopefully eliminate them altogether.

The first product containing boatloads of synthetic hormones is perfume. I had a hard time eliminating this product because I have so many favorite scents from various brands and, let’s be honest, it is really nice to smell nice! However, all perfumes are filled with synthetic ingredients (hormones are just one of the many). The liquid form as well as the application areas make it an easily absorbable product. Spraying the perfume on the skin gives it direct access to your bloodstream through the pores of your skin. Wearing perfume means exposing your body to a multitude of toxins that will only hurt your body and worsen your hormone imbalance. It is impossible to restore balance if you are actively contributing to the imbalance. Perfume smells good, but what is more important…Smelling nice temporarily or being healthy???

Organic essential oils are a fantastic replacement for perfumes and you can find them at a variety of stores. I highly recommend Mountain Rose Herbs for essential oils. Their products are both good quality and very affordable.

Other products to avoid are scented deodorants and pads or tampons. Once again, we have the scent issue, but when it comes to these easily absorbed products unscented is always the way to go. It can be so easy to overlook everyday products and not even realize just how toxic they are or how influential they can be upon your hormones. But sadly they both possess the ability to easily do so with consistent use. Sensitive Unscented Freedom deodorant is an excellent aluminum-free option if your current deodorant brand does not offer unscented. As for pads or tampons, you can find an unscented product from the majority of products available. If you would like to take the good health of your current pads to the next level, try organic feminine products. Rael is my favorite product because they are so silky smooth and their extensive selection is truly wonderful. Honest is another company with a good selection of organic products.

Makeup is another product to be wary of when it comes to hormones. Unfortunately, pretty much everything in makeup products is synthetic already, but you can make an extra effort to avoid scented products. Unfortunately, this is one product I have not been able to eliminate from my cosmetic regimen despite my strong desire to do so. Those baggies under my eyes won’t cover themselves and I’m still shell-shocked from that one time in high school when I decided not to wear makeup and a classmate asked me if I had a black eye. Yeah, that wasn’t a very fun experience so I do still use makeup, but I actively avoid all scented products. Liquid foundations are frequently guilty of adding a fragrance compound to their products so be wary of this and try to avoid it whenever possible. You may not be able to eliminate makeup completely but at least you can try to make the best of a not so great situation.

As far as food is concerned, there are a few products in particular that have a strong effect on your hormones and should be avoided in order to promote hormonal balance. The first is Rosehip. This herb is most commonly found in herbal teas or dessert type foods, anything with a synthetic rose flavor. It will increase estrogen production within your body, which is why it is known as an estrogen inhibitor. When you’re suffering from seizures caused by estrogen dominance, this is the last thing you want to feed your body.

Red Raspberry Leaf is similar to Rosehip. It is most commonly found in herbal tea form. I have learned the hard way that this herbal tea will greatly increase seizure activity and it will cause an increase in estrogen production. Basically, Red Raspberry Leaf will scramble your hormones even more so than they already are. Completely avoid both whenever possible.

Soy is another food to avoid. Look for codenames for soy in other products such as soy lecithin, soy protein, hydrolyzed vegetable protein (HVP), mono-diglyceride, glycine max, monosodium glutamate (MSG), etc. as well because you will want to avoid every ingredient sourced from soy.

Soybeans are an estrogen inhibitor and they encourage increased estrogen production when consumed. They may seem like a healthy thing to consume because they are a natural food product, but their effect on the human body is negative in more ways than one. Not to mention soy is a common seizure trigger for many epileptics, not just those with Catamenial Epilepsy.

Lastly, make sure to be extra careful with dairy products. For starters, always go organic no matter the extra cost because inorganic products are sourced from cows that have been injected with dozens of hormones. The poor cow is doing its job just fine, but the dairy big-wigs insist on thicker, thinner, sweeter, etc. products and they’re willing to practically poison the cow and therefore the consumer to get their way. It’s always about the bottom line, not the safety of the customer. Even organic dairy products have plenty of flaws that do nothing to help balance your hormones. Vitamins are constantly added even though they don’t belong because they are not naturally-occurring. But the organic companies are expected to compete with the big-wig inorganic companies so the consumer is often sacrificed for the bells and whistles. It’s really unfortunate, in general, but even more so when people aren’t aware that the amazing amount of “Vitamin D” in their product of choice is actually synthetic and will not benefit their bodies at all. Avoiding hormones in your average dairy products can be quite the challenge, which is why I recommend consuming raw dairy as often as possible. Raw means straight from the cow to you. When you go with raw products you can guarantee that your product is just as it is supposed to be…in its natural state and without additives. No synthetic vitamins, no preservatives, and definitely no hormones. Unfortunately, the Food and Drug Administration (FDA) has made it impossible to sell these products in grocery stores, therefore you will need to purchase such products from an individual farm. The good news is there are many of these types of farms in existence. You will want to utilize the internet in order to find one that suits your needs.

Well, there you go, these are the three actions I wish I had taken when I was fifteen and newly diagnosed with epilepsy. I know that these changes may seem overwhelming because they will alter your lifestyle, but each will benefit you greatly.

Plus, epilepsy has most likely already flipped your life upside down so what’s a few more changes in the overall scheme of things? Especially when it is a positive change that will promote healing.

The choice is yours.

As always, please feel free to email me (katie@seizethedayblog.com) with any questions you have about the information I shared here on Seize the Day Blog.

 

 

Medical Disclaimer:

The information posted on Seize the Day Blog, including but not limited to, articles, images, recipes, text, and other material are shared for informational purposes only. None of the writings should be looked upon as advice meant to replace that of an actual medical professional. If you suspect you have a serious medical condition you should seek help from a healthcare professional immediately. Please be aware that the author of this website is posting information simply to inform NOT to recommend others about health-related topics. Before following any information (i.e. undertaking a new healthcare or diet routine) found here on Seize the Day Blog, you should always consult a medical professional first. Please be sure to never disregard any medicinal advice because of something you have read on this website.

Epilepsy Insight #11: Three Tips for Epileptics

 

What if? Apart, these two words are harmless but put ‘em together and you may just find yourself confronted with a dangerous task…self-reflection.

Looking back on the past is often avoided by people (myself included) because it can be painful, both emotionally and psychologically. We are reminded of our mistakes and even more so of the fact that we can’t change any of it.

So often, I look back over my journey with epilepsy and I wonder, “Where would I be today if I had only done “this” differently or avoided “that” completely instead of diving in so willingly like I had in the past?” I get completely caught up in the “what if’s?” of life and do you know what this does for me??  Absolutely nothing. I do not benefit from focusing on what I should have done in the past nor what I need to be doing in the future. Here’s the thing about the past, what’s done is done. I cannot change past events, but I can reflect upon my mistakes and hopefully apply all that I have learned to the person I am right here, right now.

I read once that we as humans shouldn’t try to complete our knowledge about life, but instead, we should be lifetime learners so that every moment of life is an opportunity for growth.

In order to fully embrace those opportunities today, we must take our focus off of what we wish we had done but didn’t as well as what we wish we could be doing if only “this, that, and the other thing” would work out in our favor. Instead, we need to shift our focus to today. What is it that you should be doing right now?

We yearn to be successful in all that we do, yet too often we simultaneously get ahead of ourselves AND hold ourselves back because our focus is misplaced. At the end of the day, God already has a perfect plan for your life so there really isn’t a need to obsess about planning the perfect future. By letting go of you and embracing Him you can begin to shift your focus on how you can fulfill His will. Bend your plans to match His by looking for His guidance each day and following His direction as you receive it one step at a time. More importantly, one day at a time. Trust me when I say that it is impossible to try and bend God’s will to fit your plans. Obsessing over the past and the future only distract you from God’s guidance, making it difficult to know exactly which step is the right one.

The truth is, I find myself in the boat of distraction more often than I’d care to admit, but that’s the point! We all mess up, but God always takes us back. It is easy to lose focus on the present. Living with epilepsy has prompted me to wonder how different my life would be if only I had been able to change certain decisions in my past. I know from personal experience that the choice to wander through the maze of past mistakes only leads me further away from Him. Luckily, God always rescues me by providing me with His map of guidance. He has taught me a lot about how to live with epilepsy. The temptation to ponder the notion of “what if?” will always be there, but thanks to God I feel better equipped to handle such a question…

The reality is, I am exactly where I am supposed to be according to God’s will so there is no need to wonder about the past. Okay, confession time…My greatest wish in my past is that there was more information on the subject of Catamenial Epilepsy when I desperately needed to know how to live with such a condition when I was first diagnosed.

Epilepsy Insight #11 is inspired by this wish. I may not be able to change my past, but I’m hoping I can change someone else’s present (and eventually future) by sharing 3 simple tips I have learned while living with Catamenial Epilepsy for the past 11 years. Watch the video below to learn more!

If you have any questions or comments regarding the information I shared, please feel free to contact me via email (katie@seizethedayblog.com) or Instagram (@seizethedayblog). Thank you!

 

 

 

Medical Disclaimer:

The information posted on Seize the Day Blog, including but not limited to, articles, images, recipes, text, and other material are shared for informational purposes only. None of the writings should be looked upon as advice meant to replace that of an actual medical professional. If you suspect you have a serious medical condition you should seek help from a healthcare professional immediately. Please be aware that the author of this website is posting information simply to inform NOT to recommend others about health-related topics. Before following any information (i.e. undertaking a new healthcare or diet routine) found here on Seize the Day Blog, you should always consult a medical professional first. Please be sure to never disregard any medicinal advice because of something you have read on this website.

 

Catamenial Epilepsy: Birth Control is NOT Your Only Solution

Alright ladies, I know we try very hard to deny it, but it’s time to embrace the ugly truth…we are hormonal, all the time. 

So when your husband called your reaction to his words the other day “very emotional and irrational” he was probably more on point than you’d care to admit. The fact of the matter is, our hormone fluctuation has more highs and lows than your average roller coaster. 

So what does this have to do with Catamenial Epilepsy?? Well, this particular condition is emphasized as a gender-specific type of epilepsy due to the seizure patterns that typically occur around a woman’s period, but there is never any elaboration on WHY these seizures are happening at this particular time. The majority of women aren’t having seizures during those 7 days that make up their periods so what makes those of us with Catamenial Epilepsy so different??

Hormones.

Whenever a woman notices a correlation between her menstrual cycle and her seizures my first piece of advice is to get lab work done to explore her hormone levels. Particularly her progesterone and estrogen levels because a hormone deficiency most likely exists. I prefer the OATS lab test because it gives an incredibly thorough examination of your hormones, vitamins, and minerals. You can order this lab work through Dr. Jocker’s by visiting the following link:

https://drjockers.com/lab-testing/

Progesterone is known to be the calming hormone while estrogen is known to be the excitable hormone. When balanced, the menstrual cycle works just fine. The two hormones keep each other in check when there are healthy levels of each present in the human body. Our main concern is with the outcome of imbalanced hormone levels. Particularly too much estrogen and not enough progesterone. When there is not enough progesterone present to keep the effects of the estrogen in check, a build up of excitable energy begins to collect inside the brain. The brain knows it needs to get rid of this stored energy, but the conventional methods aren’t an option due to the lack of progesterone. So, instead the energy is released in short, but hurried waves of activity or what is clinically known as a seizure.

If an EEG is administered on the average person with perfectly normal brain activity, you will receive a horizontal recording of a wave-like line across a piece of paper. The existence of activity, but at a calm and consistent pace. When an EEG is done on someone during a seizure, you will see a wave-like line, however, it will be interrupted by sharp and hurried lines. These lines look very similar to the lines you see on a heart monitor machine. Each time the heart beats it sends a pulse of energy through the body, a pulse that is recorded by the heart monitor. Once again, this is a jolt of energy just as seen on an EEG reading during a seizure. Those sharp lines marking the beat of the heart pumping blood throughout the body are a sign of necessary energy where as the readings on the EEG are evidence of built-up excited energy.

The energy is not being released in smooth, consistent patterns instead it is accompanied by unexpected bursts that occur depending on how quickly the excitable energy is being transferred to the brain. For some women, this may be only during those 7 days of bleeding. Or it may be more often. This is completely dependent on the individual. However, the four phases that make up this 28 day cycle mean that our hormones are constantly shifting before and after our period. This is also why it is not uncommon for some women with Catamenial Epilepsy to experience more seizures during the estrogen peak time, which is during those first fifteen days of the cycle. This is the phase of ovulation. 

“Steroid hormones such as estrogen and progesterone circulate throughout the brain and have been shown to have effects of neuronal excitability. Estrogen has been shown to increase seizures, whereas progesterone has anti-seizure effects. Hence, imbalances in estrogen and progesterone levels might lead to seizures.” (Epilepsy Foundation).

I am providing this brief history because it is important to understand and acknowledge this connection before you can truly begin to find a solution. Solutions for Catamenial Epileptics may be limited, but you still want to be aware of the entire situation at hand before making any drastic or life-changing choices. 

Catamenial Epilepsy as defined by the Epilepsy Foundation is “a gender-specific type of epilepsy in which seizure frequency intensifies during certain phases of the menstrual cycle. An increase in seizures in parallel with the menstrual cycle in some women with epilepsy has been noticed since ancient times.” 

It is also mentioned that “traditionally used anti-epileptic drugs typically do not have an effect on seizures in Catamenial epilepsy” (epilepsy foundation). 

So basically, women suffering from Catamenial Epilepsy have quite the problematic condition, but they are left empty-handed where solutions are concerned. Too often, medical professionals fail to mention the underlying causes of seizure activity during a hormonal time of the month. The key word here is hormonal. The unfortunate fact of the matter is that, despite popular belief, those 7 days comprising a period are NOT the only peak in hormones we females experience each month. Those 7 days are simply a facet to a hormonal cycle that, if on track, lasts 28 days every single month. 

There are four phases that comprise this 28 day cycle of menstruation and each can have quite the effect on the human body. Menstrual phase (bleeding), Follicular phase (ovary is getting ready to release an egg), Ovulatory phase (egg is released), Luteal phase (time between egg’s release and the start of menstruation). 

These days, the majority of women do not have a completely normal 28 day cycle. This is because of our constant exposure to synthetic hormones in our daily lives. These can come from the foods we eat, the beauty products we use, and even the environment. 

Processed foods are filled with synthetic hormones, dominantly estrogenic ingredients, that wreak havoc on our body’s natural ability to produce and process estrogen, progesterone, testosterone, serotonin, norepinephrine, and Vitamin D. 

Fun Fact: Vitamin D is called a vitamin but it behaves more like a hormone because of the way it is received and processed by our bodies.

These synthetic hormones are often known as Phyto-Estrogens and Xeno-Estrogens. And they can dominate your body if you are exposed too many times. The thing about these synthetic hormones is that the human body does not know how to digest these ingredients because they are not real food ingredients. They are chemical compounds created in a lab, therefore your body places these into a sort of “Unable to Process” category. The problem with this category is that it is like the “in-between” inside the human body. Since the body cannot process them, they are also not being detoxified from the body. Instead, these ingredients just sit there inside your body until they are absorbed into your cells. Once absorbed into your cells, it can take years before the synthetic hormones are actually carried out of the human body. If you are consistently exposed, which the majority of us are, then that stash of built-up synthetic hormones becomes a collection and before you know it the rest of your body is slowly crumbling from the toxic exposure.

These synthetic hormones will actually interrupt your body’s natural ability to produce the proper amount of all of your key hormones. This is when the real problems begin. This is when we face the start of hormone imbalances and in extreme cases, hormone-related seizures. 

For those of you battling Catamenial Epilepsy, I’m sure the majority of you have sought real solutions that will target a hormone balance. 

Have you ever been recommended to try birth control as a means to balance your hormones??? 

In most cases, birth control does come up as an option. However, the tough question is should you try it? And, if you do try it, will it actually work? Will this successfully contain your seizures? Based upon my own personal experience with birth control, my answer to each of these questions is a resounding NO. 

For starters, each birth control pill is like a tiny hormone grenade waiting to explode inside your system. And the shrapnel that is leftover from this explosion is an absolute mess to clean up! Realistically, it is the exact type of thing every Catamenial Epileptic should avoid! Synthetic hormones will not balance your hormones they will only further prevent your body from producing these hormones naturally. 

Birth control comes in two forms…a progesterone base or an estrogen base. Both are completely synthetic and both are only more inflammatory. In my case, I suffer from a severe hormone imbalance where my body has too much estrogen and too little progesterone. The even scarier thing is that in addition to the imbalance, I’m deficient in both hormones, my levels in each are dangerously low. However, despite not having healthy levels of estrogen I still have more estrogen in my body than I do progesterone. And here we see the problem of too much excitable hormone and not enough calming hormone to keep my menstrual cycle balanced. Birth control cannot offer you a healthy balance of hormones, it can only fan the flames of an existing fire. It further deepens the extent of your hormone imbalance.

Unfortunately, I was completely unaware of this fact when I was sixteen. I was so young at this point in time, so I wasn’t aware of all of the available options for possible solutions. I sat in a hospital waiting room at the Mayo Clinic every day for seven days with complete faith in the doctors I had evaluating my case of Catamenial Epilepsy. A gynecologist was brought on to examine the undeniable hormonal connection with my seizure activity. It was my first time visiting a gynecologist so I had no idea what to expect, but what I didn’t see coming was a pregnancy accusation. She purposely met with me without my parents present because she was absolutely certain I was pregnant and that was the explanation for my hormone related seizures. 

Despite my protests, she would not put any stock into my words until a quick examination was done along with a sonogram. The absence of a fetus and the evidence of my virginity shut her accusations down real quick. But I wish I would have realized at this point that my gynecologist wasn’t there to listen to my take on my current circumstances. She wasn’t there to help me. Frankly, I think she was just there for a paycheck and at the end of my visit to the Mayo Clinic she only worsened my circumstances. 

Her medical advice was birth control. It wasn’t my first choice solution, but I was desperate and out of options. It was clear that my hormones were severely imbalanced and she seemed to think the birth control would “solve” this issue for me. It was only after I began the birth control that I realized she prescribed me an estrogen based pill.
After 7 days of constant hormone evaluation, evaluation that explored in great depth my Progesterone DEFICIENCY and Estrogen dominance, the gynecologist still prescribed me a birth control that would only increase my estrogen levels. I wouldn’t trust any birth control to solve a hormone imbalance, but the least she could have done was prescribe me a progesterone based birth control pill. 

I had hoped to leave the Mayo Clinic with a newfound hope for the future, maybe even a real solution to my problem. Instead I left with an official diagnosis of “Catamenial Epilepsy” instead of simply “Epilepsy” and birth control. Something I already knew and didn’t need the Mayo Clinic to confirm and something I didn’t even want. When did life become so complicated? That plane ride home was only scratching the surface of complicated. 

Upon my return, I began implementing the birth control into my daily regimen. Up until this point, I had previously had only 3 gran Mal seizures over the course of one year. Once I began the birth control, my seizure activity skyrocketed. I went from 3 seizures in 365 days to 14 seizures in 7 days. 

I had only just finished my first year with epilepsy so to experience such a drastic increase was completely overwhelming for both my family and I. Eight of those 14 seizures happened in one night, an event that actually landed me in the back of an ambulance. Anyone with epilepsy knows that one gran Mal seizure is enough to steal all of your energy and turn you into a couch potato. So the eight consecutive seizures left me completely unconscious. 

The worst part for my family was the realization that 9-1-1 was necessary to bring my body to a stable state. Hence, the need for the paramedics who could give me a quick shot of phenytoin to calm my brain down and then 1000 mg more when I got to the hospital. Over the next week, I continued to experience an increase in my activity and had 6 more gran mals before I finally decided to stop the birth control. 

In total, I was on the birth control for two weeks. During those two weeks, I experienced an increase in my estrogen levels and saw zero improvement where my hormone imbalance was concerned. I actually needed immediate progesterone supplementation to try and heal the damage done by the birth control. 

My warning against birth control is not done so randomly or with a biased outlook on the product. I made the mistake of giving birth control a chance…I took a leap of faith on the wrong product. Today, I constantly wonder about the true extent of the damage that was done, but I will never know just how much damage was done because I cannot undo my actions that day at the Mayo Clinic. I do not know exactly how different my life would be today if I chose a holistic solution from the very beginning, but my success with holistic medicine has taught me one thing…the damage from conventional medicine solutions like birth control is probably greater than I realize. 

So, when I warn others about the risks of birth control I do not do it lightly. Someone considering birth control needs to realize one very important fact…there are other ways to alter hormone levels. One in particular is Wild Yam. This is my go-to method for healing hormone imbalances and supplementing progesterone. It comes in both a liquid form and a capsule, I prefer the liquid form because supplements are most easily absorbed under the tongue. The best part about this natural supplement is that it has the exact opposite long-term effect of birth control. Instead of hindering your body’s ability to produce hormones naturally, Wild Yam acts as a support for this production. Consuming this product will actually help your system to process the proper amounts of hormones so that balance can be maintained. 

I like the Wild Yam by Herb Pharm, which you can find here. If you would like something else, Google has lots of options as well!

This is yet another reason why it is such an amazing option for progesterone supplementation. You aren’t actually pumping hormones into your body like you would with other hormone supplements such as Progesterone liquid drops. You are consuming a vegetable that simply promotes natural hormone production. No interruption, no synthetics.  

At the end of the day, what you need most is proper production so that you can rest assured that your body is producing the correct amount of every hormone in your body. Only then will you be able to maintain balance. 

What no doctor ever tells you at your diagnosis of Catamenial Epilepsy is just how challenging your hormones can be to change. If you’re estrogen dominant like me, the doctors will also fail to mention just how drastic a simple rise in the estrogen hormone can be. It must be done with great care and an abundance of patience. It is challenging, but it is not impossible if you choose a method that supports your body’s natural production of hormones. 

Birth control has proven to be successful for some women so even though it did not work for me as a solution for Catamenial Epilepsy, maybe it might work for others. Just be sure to consult your doctor before making any changes to your daily regimen. Be sure to keep in mind that there are multiple methods for treating hormone imbalances.

If you would like to read more about some these other methods here on Seize the Day Blog you can do so by reading any of the following articles below:

Vitamin D: A Prime Cornerstone of Your Total Body Health

Hormone Overload: Phytoestrogens & Xenoestrogens

Raw Honey: The Sweet & Sticky Side of Natural Skincare

Calendars & Journals: The Key to Managing Your Catamenial Epilepsy

Quality of Foods: The Key to Healthy Living Begins With Your Diet:

Catamenial Epilepsy

Monosodium Glutamate (MSG): The Ingredient That Should Come with a Warning Label

 

Sources:

Epilepsy Foundation: https://www.epilepsy.com/article/2016/10/basics-about-catamenial-epilepsy 

 

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