It has been my own personal experience that keeping track is key for any medical condition, particularly epilepsy. I place an extra emphasis upon epilepsy because this action will allow you to discover patterns in your seizure activity. It will also help to document those little details that are easy to forget over long periods of time but can be incredibly beneficial later on down the road (whether you realize it or not in the moment). It is because of my dad and his habit of keeping track of my seizure occurrences in relation to my periods each month that we were able to discover the monumental role hormones were playing in my condition. It prompted our extensive research on hormones in relation to seizures and helped us to discover the newly established condition called Catamenial Epilepsy. Nowadays, you can find plenty of info on this type of epilepsy, but back in 2009, the internet was scarce for even the tiniest mention of it! Only in scholarly journals or medical journals could you find a teeny tiny reference to hormone-related seizures.
I keep track of my seizures, diet, supplement & medication regimen, when new products are added to my daily regimen as well as when they are removed, and any noteworthy details that I think could be useful in the future. Sometimes when I’m recording details I think to myself, “I’m not exactly sure how this might be helpful, but I’m going to write it down anyway because you never know.” I cannot tell you how many times I have been so grateful to my self down the road that I did record what felt like menial details. These supposedly “menial” details are usually the most helpful in identifying exactly how my body was feeling at that specific time. Most importantly, this habit of writing everything down has helped me to reduce seizure activity on many occasions in the past and I am more confident than ever that it will continue to do this for me in the future.
When it comes to my own keeping track, I prefer the yearly planners that have block calendars in the front and note areas in the back where I can record extra details. A small notebook in addition to the block calendar is also helpful when recording daily meals & notes. This way you’ll have plenty of room for whatever information you choose to record.
Check out my video below for the full details on the subject as well as my article, Calendars & Journals, here on the blog.
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